Florence, WI | Saturday, May 18, 2024 at 9:30 AM CST

2023 Run Like a Zebra | Website by North Country Website Design

Florence, WI 54121

info@runlikeazebra.com | 715-301-0905

About Us

Wheelchair Zebra description of EDS
Run Like a Zebra for EDS was started by a group of family and friends that have loved ones who are living with Ehlers-Danlos Syndrome.

Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome is a group of inherited disorders that mostly affect the skin, joints, and blood vessels. EDS is a rare syndrome - there are fewer than 200,000 US cases per year. Ehlers-Danlos syndrome affects connective tissue, primarily the skin, joints, and blood vessel walls. Symptoms include overly flexible joints that can dislocate, and skin that's translucent, elastic, and bruises easily. In some cases, there may be dilation and even rupture of major blood vessels. Treatment helps manage symptoms and monitor for complications. Options include drugs, physical therapy, and sometimes surgery. For this event, Inclusion Fitness works in conjunction with Zebra Hearts Foundation to help individuals with Ehlers-Danlos Syndrome. Run Like a Zebra for EDS was started by a group of family and friends that have loved ones who are living with EDS. The aim is to support and empower families by raising awareness in hopes of early diagnoses and treatments.

Zebra Hearts Foundation

We work closely with Zebra Hearts Foundation during the preparation of this race. They are a group of family and friends that have loved ones who are living with rare diseases. Zebra Hearts Foundation is focused on supporting and empowering other families like theirs by raising awareness in hopes of early diagnoses and treatments. Their mission is to provide direct assistance to people with under-supported, rare diseases to enable them to lead fuller lives.

Meet some of the individuals suffering from EDS.

Ehlers-Danlos syndrome is a group of inherited disorders that mostly affect the skin, joints, and blood vessels. EDS is a rare syndrome - there are fewer than 200,000 US cases per year. Ehlers-Danlos syndrome affects connective tissue, primarily the skin, joints, and blood vessel walls. Symptoms include overly flexible joints that can dislocate, and skin that's translucent, elastic, and bruises easily. In some cases, there may be dilation and even rupture of major blood vessels. Treatment helps manage symptoms and monitor for complications. Options include drugs, physical therapy, and sometimes surgery. For this event, Inclusion Fitness works in conjunction with Zebra Hearts Foundation to help individuals with Ehlers-Danlos Syndrome. Run Like a Zebra for EDS was started by a group of family and friends that have loved ones who are living with EDS. The aim is to support and empower families by raising awareness in hopes of early diagnoses and treatments.

Email: info@runlikeazebra.com

Location: Florence, WI 54121

Phone: 715-301-0905

2023 Run Like a Zebra

Website by North Country Website Design

About Us

Run Like a Zebra for EDS was started by a group of family and friends that have loved ones who are living with Ehlers-Danlos Syndrome.

Ehlers-Danlos Syndrome

Zebra Hearts Foundation

We work closely with Zebra Hearts Foundation during the preparation of this race. They are a group of family and friends that have loved ones who are living with rare diseases. Zebra Hearts Foundation is focused on supporting and empowering other families like theirs by raising awareness in hopes of early diagnoses and treatments. Their mission is to provide direct assistance to people with under-supported, rare diseases to enable them to lead fuller lives.

Shyla B.

Meet some of the individuals

suffering from EDS.

Florence, WI | May 18, 2024