Run, Walk, or Roll for Ehlers-Danlos Syndrome
906-367-5404
906-282-6194
A Fundraiser Sponsored by
2021 Run Like a Zebra
Sponsored by Inclusion Fitness
info@inclusion.run | 906-367-5404 or 906-282-6194 | Florence, WI
Website by North Country Website Design.
About Us
Run Like a Zebra for EDS was started in order to help those with Ehlers-Danlos Syndrome. Specifically, raising funds for April D. of Roscoe IL, Shyla B. of Crystal Falls MI, and EDS Wisconsin.Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome is a group of inherited disorders that mostly affect the skin, joints, and blood vessels. EDS is a rare syndrome - there are fewer than 200,000 US cases per year. Ehlers-Danlos syndrome affects connective tissue, primarily the skin, joints, and blood vessel walls. Symptoms include overly flexible joints that can dislocate, and skin that's translucent, elastic, and bruises easily. In some cases, there may be dilation and even rupture of major blood vessels. Treatment helps manage symptoms and monitor for complications. Options include drugs, physical therapy, and sometimes surgery. Shyla and April will be receiving help from Run Like a Zebra for EDS. See below for how the proceeds from the race will be used for Shyla and April. EDS Wisconsin will be receiving a generous donation (at least 10% of profit from race) from Run Like a Zebra for EDS race to use as EDS Wisconsin sees fit.EDS Wisconsin
Why fundraise for EDS Wisconsin? EDS Wisconsin has been very helpful in helping both April and Shyla. April lives near the Wisconsin border in Illinois and Shyla is from a town near the Wisconsin border of Michigan. So, EDS of Wisconsin was the closest place for both to help them with their EDS diagnoses.Shyla B.
Shyla grew up in Crystal Falls, Michigan. She then moved to Marquette to get her degree from Northern Michigan University. She is currently 21 years old and resides in Carbondale, IL where she is perusing her masters degree. Shyla’s EDS has progressed severely - some days she might dislocate or sublux 6-10 joints - on a bad day, she might have 20 dislocations. Before Shyla showed many EDS symptoms, she was a dancer and a gymnast. EDS took that away from her. Shyla is hoping to purchase new braces (knee, ankle, wrist, hip, etc.), a foldable mobility scooter and a housekeeper from the money raised from the race.April D.
April is 15 years old and lives with her parents and brother in Roscoe, IL. April has had a very rough year. She has been unable to attend school this past school year because of the severity of her EDS symptoms. Her parents struggle daily to help take care of her and to pay for all her medical and daily needs. Before April showed many EDS symptoms, she was a gymnast and a dancer. EDS took that away from her. April’s family is hoping to get funds to help with her daily needs such as her special dietary needs, medical therapies not covered by insurance, home nurse and housekeeper, and her endless medical bills and supplies.
Run, Walk, or Roll for Ehlers-Danlos Syndrome
A Fundraiser Sponsored by
2021 Run Like a Zebra for EDS
Sponsored by Inclusion Fitness
info@inclusion.run | Florence, WI
906-367-5404 or 906-282-6194
Website by North Country Website Design.
About Us
Run Like a Zebra for EDS was started in order to help those with Ehlers-Danlos Syndrome. Specifically, raising funds for April D. of Roscoe IL, Shyla B. of Crystal Falls MI, and EDS Wisconsin.Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome is a group of inherited disorders that mostly affect the skin, joints, and blood vessels. EDS is a rare syndrome - there are fewer than 200,000 US cases per year. Ehlers-Danlos syndrome affects connective tissue, primarily the skin, joints, and blood vessel walls. Symptoms include overly flexible joints that can dislocate, and skin that's translucent, elastic, and bruises easily. In some cases, there may be dilation and even rupture of major blood vessels. Treatment helps manage symptoms and monitor for complications. Options include drugs, physical therapy, and sometimes surgery. Shyla and April will be receiving help from Run Like a Zebra for EDS. See below for how the proceeds from the race will be used for Shyla and April. EDS Wisconsin will be receiving a generous donation (at least 10% of profit from race) from Run Like a Zebra for EDS race to use as EDS Wisconsin sees fit.EDS Wisconsin
Why fundraise for EDS Wisconsin? EDS Wisconsin has been very helpful in helping both April and Shyla. April lives near the Wisconsin border in Illinois and Shyla is from a town near the Wisconsin border of Michigan. So, EDS of Wisconsin was the closest place for both to help them with their EDS diagnoses.Shyla B.
Shyla grew up in Crystal Falls, Michigan. She then moved to Marquette to get her degree from Northern Michigan University. She is currently 21 years old and resides in Carbondale, IL where she is perusing her masters degree. Shyla’s EDS has progressed severely - some days she might dislocate or sublux 6-10 joints - on a bad day, she might have 20 dislocations. Before Shyla showed many EDS symptoms, she was a dancer and a gymnast. EDS took that away from her. Shyla is hoping to purchase new braces (knee, ankle, wrist, hip, etc.), a foldable mobility scooter and a housekeeper from the money raised from the race.April D.
April is 15 years old and lives with her parents and brother in Roscoe, IL. April has had a very rough year. She has been unable to attend school this past school year because of the severity of her EDS symptoms. Her parents struggle daily to help take care of her and to pay for all her medical and daily needs. Before April showed many EDS symptoms, she was a gymnast and a dancer. EDS took that away from her. April’s family is hoping to get funds to help with her daily needs such as her special dietary needs, medical therapies not covered by insurance, home nurse and housekeeper, and her endless medical bills and supplies.
