Florence, WI | Saturday, May 18, 2024 at 9:30 AM CST
2023 Run Like a Zebra | Website by North Country Website Design
Florence, WI 54121
info@runlikeazebra.com | 715-301-0905
About Us
Run Like a Zebra for EDS was started by a group of family and friends
that have loved ones who are living with Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome is a group of inherited disorders that mostly affect the skin,
joints, and blood vessels. EDS is a rare syndrome - there are fewer than 200,000 US
cases per year.
Ehlers-Danlos syndrome affects connective tissue, primarily the skin, joints, and blood
vessel walls. Symptoms include overly flexible joints that can dislocate, and skin that's
translucent, elastic, and bruises easily. In some cases, there may be dilation and even
rupture of major blood vessels. Treatment helps manage symptoms and monitor for
complications. Options include drugs, physical therapy, and sometimes surgery.
For this event, Inclusion Fitness works in conjunction with Zebra Hearts Foundation to
help individuals with Ehlers-Danlos Syndrome. Run Like a Zebra for EDS was started by a
group of family and friends that have loved ones who are living with EDS. The aim is to
support and empower families by raising awareness in hopes of early diagnoses and
treatments.
Zebra Hearts Foundation
We work closely with Zebra Hearts Foundation during the preparation of this race. They are a
group of family and friends that have loved ones who are living with rare diseases. Zebra Hearts
Foundation is focused on supporting and empowering other families like theirs by raising
awareness in hopes of early diagnoses and treatments. Their mission is to provide direct
assistance to people with under-supported, rare diseases to enable them to lead fuller lives.
Meet some of the individuals suffering from EDS.
Ehlers-Danlos syndrome is a group of inherited
disorders that mostly affect the skin, joints, and blood
vessels. EDS is a rare syndrome - there are fewer than
200,000 US cases per year.
Ehlers-Danlos syndrome affects connective tissue,
primarily the skin, joints, and
blood vessel walls. Symptoms
include overly flexible joints that
can dislocate, and skin that's
translucent, elastic, and bruises
easily. In some cases, there may
be dilation and even rupture of
major blood vessels. Treatment
helps manage symptoms and
monitor for complications.
Options include drugs, physical
therapy, and sometimes surgery.
For this event, Inclusion Fitness works in conjunction
with Zebra Hearts Foundation to help individuals with
Ehlers-Danlos Syndrome. Run Like a Zebra for EDS was
started by a group of family and friends that have loved
ones who are living with EDS. The aim is to support and
empower families by raising awareness in hopes of
early diagnoses and treatments.
Email: info@runlikeazebra.com
Location: Florence, WI 54121
Phone: 715-301-0905
2023 Run Like a Zebra
Website by North Country Website Design
About Us
Run Like a Zebra for EDS was started by a group of
family and friends that have loved ones who are
living with Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome
Zebra Hearts Foundation
We work closely with Zebra Hearts Foundation during
the preparation of this race. They are a group of
family and friends that have loved ones who are living
with rare diseases. Zebra Hearts Foundation is
focused on supporting and empowering other
families like theirs by raising awareness in hopes of
early diagnoses and treatments. Their mission is to
provide direct assistance to
people with under-supported,
rare diseases to enable them to
lead fuller lives.
Shyla B.
Meet some of the individuals
suffering from EDS.
Florence, WI | May 18, 2024
